I started this blog not to be an overinflated account of my life yet all its been is me me me... I haven't mentioned every email or Facebook post or blog comment, card, plate of cookies or basket of fruit or dinner, flowers or anything else that has come from the community. Its only half me me me, the other half has come from the community.
We left off the last post with three days in bed. I've taken two trips to urgent care. One trip to the General Practitioner, one to the ENT, two to the MS specialists, 3 to the ER, 2 to the hospital by ambulance, and here I am still in bed.
When the doctors say up and down days they mean down days with a few up. The right side of my face and tongue is numb. I can't open my eyes because of the spinning and dizziness. The least concerning symptom is the lack of ability to walk, because I've taught myself to do that twice already. In this last stay at the ER they repeated the MRI and found two new lesions causing my new symptoms. So, we started a 5 dose of iv steroids in the hospital hoping that will make a difference. If not, we are on to IVIG. Then down to Yale to start my real MS treatment.
I miss my home and my children terribly! But, I know I need to get through this part so I can take care of them.
No comments:
Post a Comment